Patient-Powered Research Network Explained

What Is a Patient-Powered Research Network?

Patient-Powered Research NetworkA Patient-Powered Research Network, also known as PPRN, is a new concept in cancer research. This research network initiative is spearheaded by the Patient-Centered Outcomes Research Institute.

According to FORCE Vice President of Community Affairs and Public Policy Lisa Schlager, the PPRN exists specifically by and for the cancer patient community. This network is driven by patients who are interested in Patient-Centered Outcomes Research and comparative effectiveness research for their community.

To find out more about what a Patient-Powered Network is, watch the video below.

This video has been brought to you by FORCE: Facing Our Risk of Cancer Empowered

Transcript

Lisa Schlager:  The Patient-Powered Research Networks also known as PPRNs are rather new concept in research, being spearheaded by the Patient-Centered Outcomes Research Institute.  The Patient Powered Research Networks are a disease focused network driven by patients who are interested in pursuing Patient-Centered Outcomes Research and comparative effectiveness research for their community.  What’s unique about these research networks is that there spearheaded specifically by and for the patient community.  Everything from the governance to the structure, to the questions asked, to the dissemination of information and the promotion of the network, all goes back to the patient community.  It’s a wonderful way for patients to get engaged in influencing research that might affect them exploring quality of life issues for instance were comparative effectiveness for certain treatments, certain therapies, or surgeries.  This information is crucial to the patient community and Patient-Powered Research Networks are driving that effort to look at these issues to share that information with the community and to work with other patient communities to grow a network of Patient-Powered Networks.