What are the Results of the Metastatic Breast Cancer Alliance Report?

Results of the Metastatic Breast Cancer Alliance Report

metastatic breast cancer allianceOn National Metastatic Breast Cancer Awareness Day, October 13, the MBC Alliance revealed the results of their Metastatic Breast Cancer Alliance Report, Changing the Landscape for People Living with Metastatic Breast Cancer.

The MBC Alliance, representing 29 cancer organizations including Research Advocacy Network, released the report on its one‐year anniversary after a comprehensive year-long analysis of current MBC research and patient needs, as well as information and services.

While MBC claims the lives of 40,000 women and men in America every year and 20-30% of those diagnosed with early stage breast cancer will go on to develop recurrent, metastatic disease, awareness remains low and only 7.1% of breast cancer research investments over the last dozen years were focused on MBC.

Katherine Crawford-Gray shares the results of the Metastatic Breast Cancer Alliance Report in the video below.

This video has been brought to you by: The Alamo Breast Cancer Foundation

Transcript

Katherine Crawford-Gray:  We are very excited about the research that we want to take you know over the last year looking at the landscape for metastatic breast cancer patients.  We look at the number of different areas and so for example with scientific research, laboratory research, and clinical trials we found through a very vigorous methodology that of all the private funding going to breast cancer research are only 7% is directed towards Metastatic breast cancer research and there is not much coordination between laboratories and clinical trials doing this work, so we are very excited about how we can increase the coordination of funding and also perhaps the amount and how can we involve patients in the design of clinical trials, so that other end points such as quality of life end points can be part of a trial experience beyond extending life. 

In terms of the epidemiology peace here in the United States, we don’t have an accurate picture of how many women are living with metastatic breast cancer because of the way that they are counted in the data registries with the National Cancer Institute in individual states and we have a very exciting project starting in 2015 with the National Cancer Institute and SEER registries in a pilot projects to look at improve how we collect data and information on people with that the disease and we are also excited to look how we can improve communication between our patients and their healthcare providers and their family and broader public and we will be working with a number of our partners on some trials looking at how we can some of the under served communities improved communication between healthcare providers and patients who really struggle to understand at times of the diagnosis and what their lives will be like now that they will be living a life of treatment.  These are some of the initiatives that we were very excited about and will be working on hard in 2015 and 2016.

The best way for individuals and organizations to become involve with the Metastatic Breast Cancer Alliance is to go our website www.mbcalliance.org and click on the contact button and send all the requests through to me directly through that button.  They can also follow us on our Facebook page which is facebook.com/mbcalliance and we do post lot of the information about what we as an alliance and also our members are doing through the Facebook page, so two great ways to get information about the alliance.